Skip to main content

Total raised so far

23%

£179,430.20 of £750,000 target +£21,236.01 Gift Aid See breakdown

Recent donations

9 hours ago

Stephen Walsh

£10.00

+ £2.50 Gift Aid

Please keep up the good work

9 hours ago

Carl Fisher

£20.00

+ £5.00 Gift Aid

3 days ago

Liz Riley

£10.00

+ £2.50 Gift Aid

great cause xx

4 days ago

Paul Carlin

£5.00

+ £1.25 Gift Aid

You're making a difference

4 days ago

Elizabeth Cannon

£20.00

Something to help you reach your target

4 days ago

Chris Orme

£10.00

+ £2.50 Gift Aid

Thank you Graeme and your team for doing this fund raising for such a worthwhile cause - best wishes Isla!

5 days ago

Chris S

£5.00

+ £1.25 Gift Aid

This is a brilliant thing to do

24th March

Kevin Lees

£5.00

+ £1.25 Gift Aid

23rd March

Tony Fleming

£5.00

+ £1.25 Gift Aid

23rd March

Bernard Collins

£10.00

This is such an important cause

DEBRA UK Challenge 2025

Graeme Souness is raising money for DEBRA


Share this page with your friends:

My story

We’re getting back in the water to BE the difference for EB. Are you with us?

In June 2023, me and the DEBRA swim team swam 30 miles from Dover to Calais. Our motivation was my wee friend, Isla Grist, who lives with epidermolysis bullosa (EB), a genetic skin blistering condition that make her skin as fragile as a butterfly’s wing. Isla lives in constant, debilitating pain.
We took on the challenge to raise awareness of EB, also known as butterfly skin, and to secure vital funding for EB research. We did it, we completed the challenge in 12 hours 17 minutes, and thanks to the amazing support received, £1.5m was raised which enabled DEBRA to commission the first two EB clinical trials.

We need to do more though, there are 40 drugs that need to be tested if we are to ensure that in the future there is an approved drug treatment for every form of EB. Treatments that could be life-changing for people living with this horrendous condition.

So, this May we’re getting back in the water but this time we’ll be swimming to France… and back! Double the distance for EB!

Are you with us?

You could sponsor us or set up your own fundraising challenge here on Give as you Live, perhaps a sponsored swimathon? Whatever you do will make a big difference for people living with the pain of EB.
Thank you, together we can BE the difference for EB.

Graeme

P.S., look out for us on the TV soon where we’ll be sharing more news about our biggest challenge yet!


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

My updates

15 hours ago

We’re heading up to Manchester today ready to spread the word about the challenge on BBC Breakfast tomorrow morning followed by a busy week of media interviews.
 
I’m excited to be getting back in the water for this challenge but I’m also a bit nervous it must be said. The training has been going well though, we’ve had plenty of 6am starts in the sea at Poole, which are certainly invigorating! With each swim I’m feeling stronger, which is encouraging. I’m certainly not the strongest swimmer; in fact, I’m probably the weakest in the team, but I’ll give it my best shot, we must.
 
We’re not exactly sure when we’ll be going as it’s weather dependent but hopefully in early May. Firstly, though it’s time to make as many people as possible aware about what we’re doing and why. I’ll be back in touch soon.
 
P.S. If you can spare a few pennies please sponsor me, or if you’re inspired to do something yourself you can set up your own fundraiser here on Give as you Live, why not set up your own mini swimathon?
 
Best wishes
 
Graeme

Monday 23rd September 2024

So, it’s been a few weeks since my last update and it’s been an interesting few weeks for me, to say the least! As you’re probably aware I’ve been struggling all year to fully recover from the shoulder surgery I had in January. This prevented me from taking part in the swim aspect of the challenge, but I was fully motivated to take on the cycling, even though I absolutely detest cycling!

That was the plan until a routine check-up with my heart surgeon a couple of weeks ago revealed that I needed heart surgery….again! This has now happened, and I am doing well but I can’t take on any strenuous physical activity for the next few months. If that wasn’t enough, the team has been battling the elements and haven't been able to take on the channel swim safely before the season finishes in early October.
 
Because of my physical situation and because the team is running out of time to get the swim in before the season ends, we’ve made the difficult decision to reschedule the challenge to next May. This then gives me time to fully recover from both my shoulder and heart surgeries so that I’m fighting fit to lead the team.
 
Please stay with me and the team on this journey. People like my good friend, Isla Grist, living with EB, face challenges and setbacks every day and yet they keep going. Their physical and mental strength is greater than any opponent I’ve ever encountered on the pitch, which is why we must keep going for them and we will complete this challenge.
 
You can help by sponsoring the challenge, by setting up your own fundraiser, or by telling your friends, family, colleagues, anyone you know about EB and the challenge we are taking on. With your support we can ensure a better future for everyone living with the pain of EB.
 
Please look out for updates on how my training is going as I get match fit!
 
Thank you for your continued support.
 
Graeme

Tuesday 27th August 2024

Training is ramping up! I spent most of my bank holiday weekend on the bike. I must admit the training has been tough as I’m not built for cycling but I’ve been working hard.
 
Each time I get on that bike, I have Isla on my mind. I’ve spent a lot of time with her recently and each time I see her I’m reminded of why I’m doing another challenge. Isla lives with the excruciating pain and itch from EB daily.
 
Please keep up your support, spread the word and ask your friends and family to donate. Your donations encourage me and Team DEBRA to keep going, keep training and keep ‘BEing the difference for EB’.
 
Thank you.

Charity

DEBRA

Charity number: 1084958

Campaign

BE the difference

More great ways you can raise funds

Help me reach my £750,000 target

Your donations will help the great work DEBRA do.

Donate now